I wanted to title this post "Right place at the Right Time" or "Revived Passion" or " My newest Buddy" (as a play on words from the
Best Buddies program. Instead, I'm shootin' straight to the point. This post is about my neighbors newborn Chase.
Chase was born 8 days ago. He was a week past his due date, so mom went to be induced early Monday morning. He was a 7lb, 3 oz baby boy with lots of brown hair. He resembles his sister and make the cutest little squishy face. His dad says he looks like an old man when he does that. Chase was born with
Down Syndrome. He was born to young parents who had no idea that their son would be different from their almost 4 year old daughter when he was born. From what mom says, they don't have any background in Down Syndrome. I can imagine that they are ridiculously overwhelmed, scared, and disappointed all at the same time. I know, that with a background in special needs, specifically DS, I would still feel a loss for the child that I thought I was bringing into this world.
Thankfully, in my own life I know I have a tremendous support system. And I've got background knowledge and experience that would help me focus on the blessing quickly. I'm trying my best to combine my people skills with what I know about Down Syndrome to help my neighbors as much as I can without being pushy, or making them feel bad because they don't know some things yet. I'm trying my best to make them see the miracle that is their son. It is clear they love him. It is also clear that they are nervous about the hard work that lays in front of them in raising this boy. I'm trying to take some of that pressure away, by mentioning a few things my best friend's mom suggested. My best friend's sister was born with DS 23 years ago and has a lot to show for it. She leads a very full and active life, something I know my neighbors hope for their new son. I'm hoping to be able to set the two moms up to chat soon, but again, it's a delicate situation and I can't be pushy. I'll keep you posted on his progress as he grows - though I'm guessing that most of the growth will be within his parents and adult family members. His sister doesn't understand how/why he is different and frankly, won't care by the time she does understand. I know how eye opening it is to spend time with my best friend's sister and her friends....that's what my neighbors are in for and I can't help but feel warm inside when I think about it. I can just picture this little baby grinning from ear to ear as a toddler and being a little terror to his big sis and bowling with his buddies as he gets older. I can see it, because I have seen it in others. I'll keep trying to show it to his parents, so they can rebuild the dreams they have for their son!
The reason I was going to title this "Right place, Right time" is because I feel immensely connected to God's will at the moment. I mean really, what are the chances that someone with my background (sociology degree emphasis on family, teaching degree with which I taught special ed teacher for 2 years, autism therapist, best friend who's DS sister I've known since she was 9) would end up living in a cornfield where my neighbors have a son with Down Syndrome and the people across the street have a neice with Autism. I feel totally placed here. It is NOT where I picked to live. Not entirely. I thought I was going to be MUCH closer to Chicago when I moved here. When I finally found a job, but didn't like it, I thought that was my cue to pack it up and head to where I wanted to be in the first place. But by the time I came around to doing that, I'd met Mike. And I was settling in here and the hard parts about living in the city were becoming more apparent. So, I decided to be a grown up and buy a house. It happened sooner than I'd intended, I found this house, the one I'm sitting in, very early into my search. But I loved it and I couldn't pass it up, so I made it happen. I wonder now, if it was really my choice at all? I love helping people. I'm glad these are my neighbors. I'm glad we've developed friendships and trust so that I can help. It makes all the choices I've made in my life so far make sense.
The reason I was going to title this post Revived Passion, is because since chatting with my neighbor on that first day she was home, I've felt compelled to learn all I can about DS. I know what my experiences say. I know what I've been educated on from my friend's family. I know the basics of the the cause, but I don't know much more than that. I know from being in the Special Education world that my neighbors needs to get Chase signed up to start therapy when he's the right age. And they need to put him in play groups and what not. And most importantly they need an advocate to help guide them through all of this legal non-sense. It's this side of Chase's life that has caused me to do a lot of Internet research. I've found blogs of families in my neighbors shoes. I've found letters from parents of DS kids sharing their stories of what a joy their children are. I've looked more closely at the
Best Buddies, that I'm sure Janet and Kevin will want to sign Chase up for eventually. The best thing I've found is that they've got time. Chase is just a baby. Just a simple little baby, who eats, cries, sleeps, and poos like any other infant - just like the infant they thought they'd be bringng home. I think this is a hidden blessing in Down Syndrome - that it gives parents time to cope with what has been laid in their lap. Chase coming into the world has made me want to be more involved in both the DS world and the Autism world, for which I will always carry a deep passion for. I know my best friend, who I've been talking to everyday regarding Chase, feels that same way. It never ceases to amaze me how twists in turns in life can affect so many. Chase's birth has been truly inspirational.
Now, I just wait for the right opportunities to help where I can. And I get to watch this darling child grow up right next door!
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This has been my favorite site so far, though there are some amazing family blogs out there, too. It has testimonials from parents, one from a sibling, one from a 13 year old girl with Down Syndrome. It also has a link for people like me, the friend, to know what to do/say to help the best way possible. It also includes what NOT to say which I wish all people we required to read. Be sure to click on Welcome to Holland in the first paragraph. It really puts thing in perspective!